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Category: Ethan

Raising a child with a life limiting condition; the reality of MPS- hunter syndrome.

Guilt

February 16, 2016 ger Brothers, Ethan, fatherhood, Life, Motherhood, Uncategorized

It resides inside me, waiting for any opportunity to rush through my body, pull at my heart and burn my[…]

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Compassion

February 6, 2016 ger Brothers, Ethan, Irish childhood

  I sat across from his teacher. I was anxious about what she was going to tell me. He had[…]

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When Ethan has a meltdown …

January 30, 2016 ger Ethan, fatherhood, Life, Motherhood

There’s a secret world within the world of parenting a child with special needs; a world only some of us[…]

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2016…NEARLY!

December 29, 2015 ger Ethan, fatherhood, Life, Motherhood

It will be 2016 soon. Didn’t 2015 fly past? I can still remember the countdown to 2000 like it was[…]

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Dear Christmas

December 22, 2015 ger Ethan, Life, Motherhood

Dear Christmas; You have snuck up on me , yet again! How do you manage to sneak up on anyone,[…]

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12 Days of Christmas

December 22, 2015 ger Ethan, Life, Motherhood

As a parent of three boys, each with their own unique needs (For those of you who don’t read my[…]

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Why I no longer pray for a ‘cure’

December 7, 2015 ger Ethan, Life, Motherhood, mpsawarenessday2015, ProjectAlive

  I am a parent of a child with a terminal condition called Hunter Syndrome. I no longer pray for[…]

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My week of ‘oh for ffs’

November 24, 2015 ger Ethan, Life, Motherhood

This past week was; what I will call my week of ‘Oh for F***k sake’ – I must have said[…]

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Not cool lady; not cool.

November 11, 2015 ger Being Irish!, Ethan, Life, Motherhood

I am relatively new to the world of ‘blogging’. I have always loved to write but never had the confidence[…]

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Hello Folks!

November 8, 2015 ger Ethan, Life, Motherhood

  Hey Folks! I have been busy this last little while; I have been writing but can’t share anything until[…]

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