Blindsided by an eleven year old…
As parents we never really know what questions lurk in our children’s minds; eventually though, they do tend to[…]
Read moreRaising a child with a life limiting condition; the reality of MPS- hunter syndrome.
As parents we never really know what questions lurk in our children’s minds; eventually though, they do tend to[…]
Read moreI have spent many years telling myself “ it’s the little things in life that matter ” . I[…]
Read moreI haven’t been getting much sleep lately; mainly due to Ethan. Ethan is struggling with a few things lately, one[…]
Read moreI sat still. I listened intently to the rhythm of his calm breathing. I watched as the machine beeped[…]
Read moreOne of the sweetest Ethan moments I keep thinking about is also one of the darkest Ethan moments but[…]
Read moreWhat has happened to Halloween? No longer are parents buying two rolls of black bags and warning each child that[…]
Read moreTiny hands pull away, Mothers watch from afar; If it’s a first; hoping it won’t be the last. Each[…]
Read moreI, personally, don’t think everything happens for a reason – how could I ? (Given Ethans condition) But; Sometimes[…]
Read more“A magical place hidden away where you can see the fairies, gnomes and trolls live together with the animals of[…]
Read moreRemember when you had a baby? Remember when you’ve been out in public and baby needed changing; what a pain[…]
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