Other parents
It was mere weeks after Ethans diagnosis (Hunter Syndrome) when I was asked to come in to speak with a[…]
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Tag: Huntersyndrome
Appreciation for ‘him’
There are special daddies out there. They walk with us. They stand shoulder to shoulder with doctors and specialist asking[…]
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ProjectAlive.org
It started with an email. An email asking me to write a blog post for an up and coming fundraising/awareness campaign.[…]
Read moreReality check
I have been asked many times from strangers to social workers–“How do you guys deal with Ethan getting older ?”[…]
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Stranger ain’t ALWAYS danger…
Before Ethan’s diagnosis, there were plenty of other diagnoses…Sensory Processing Disorder was the most recent one, in the run up[…]
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Amazing May15th !!!
May the 15th is international MPS/ML awareness day. As you all know by now Ethan has Hunter Syndrome, what you[…]
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Perspective
Ethan was having his usual treatment on Thursday. He had also his usual treats, practically anything he wanted, when he[…]
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