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Category: ProjectAlive

For the love of Tuck

June 22, 2016 ger Ethan, FlyforMPS, Life, Motherhood, ProjectAlive

I wrote about Tucker before on FamilyFriendlyHQ I am aware that sometimes the things I write are hard to read and[…]

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**Guest Post by Sally** #mpsawareness

April 28, 2016 ger Guest writer, May 15th MPs awareness, Mps awareness day, ProjectAlive

  In 2015 our family had no idea that May 15th was MPS Awareness Day. We were lucky. Most people[…]

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Dream a little dream …

April 9, 2016 ger Brothers, Ethan, fatherhood, Life, Motherhood, ProjectAlive

From the moment we know we are pregnant…we dream. We dream about this little person growing in our bellies. We[…]

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Why I no longer pray for a ‘cure’

December 7, 2015 ger Ethan, Life, Motherhood, mpsawarenessday2015, ProjectAlive

  I am a parent of a child with a terminal condition called Hunter Syndrome. I no longer pray for[…]

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ProjectAlive.org

June 12, 2015 ger Ethan, fundraising, Life, ProjectAlive

It started with an email. An email asking me to write a blog post for an up and coming fundraising/awareness campaign.[…]

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