mpsawarenessday2015 – Live, Love, Laugh & Learn

Why I no longer pray for a ‘cure’

I am a parent of a child with a terminal condition called Hunter Syndrome. I no longer pray for[…]

This was hard to write. It is hard to read but if I’m going to share Ethans journey , I[…]

I am very lucky to have been given the opportunity to work with some of the best Family websites, such[…]

May 15th was international MPS Awareness day. It was also, the 20th anniversary of the Irish MPS Society.[…]

As Friday the 15th of May approaches, I thought I’d write about MUCOPOLYSACCHARIDOSIS (MPS) and what it stands for in[…]