Goals & Checklists…
There’s a little thing I have done since Ethans diagnosis ; something I have done to keep the reality of[…]
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Category: Ethan
Raising a child with a life limiting condition; the reality of MPS- hunter syndrome.
When D went away…
My week has been absolutely tiring – despite me being prepared for this week for weeks, I simply couldn’t have[…]
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Slowly , I have come to terms with Hunters.
“Bring him home, love him… you won’t have him that long.” The doctor’s words seemed to form cold iron chains[…]
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An award, text messaging and being a typical mammy!
I had a really surprising weekend. It certainly was an unforgettable weekend. I attended the Irish Bloggers Association awards;[…]
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Imagine ..May 15th
If you are a parent reading this, or an aunt, uncle, grandparent, cousin, sibling, friend, school teacher, a GP, a[…]
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The ‘Others’…
I have met some ignorant people while out and about with Ethan (for those of you who’ve not read my[…]
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The Things I’ll never tell you
As a special needs parent, there are many things I will never say. I believe most parents like me speak[…]
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Conversations …
When your eldest son is diagnosed with a rare genetic life-limiting condition, there are conversations you thought you’d never have.[…]
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Dream a little dream …
From the moment we know we are pregnant…we dream. We dream about this little person growing in our bellies. We[…]
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It’s only words and ….
I used to believe the only important form of communication was indeed words, how many of us have ever actually[…]
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