I’m just…
I’ll not lie; I am delighted the Easter ‘Holidays’ are coming to an end. It’s been tough…actually it has been[…]
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Category: Ethan
Raising a child with a life limiting condition; the reality of MPS- hunter syndrome.
Oh Easter …
Oh Easter…what fun you are. Stages most parents may go through during this wonderfully long winded break[…]
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Threenager Alert!
I have not had this kind of experience before. With Ethan it was different; because of his syndrome he began[…]
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It is that time of year again folks!
Saint Patrick’s Day is fast approaching. Every year, well almost every year, I try to convince my darling husband that[…]
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A carer, what is that?’
I DIDN’T REALLY see myself as a ‘carer’. I saw myself as a mother who happens to have three wonderful[…]
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The Day my world changed forever
I am taking you all back to that day…… Silence can be so very loud. I remember that kind of deafening[…]
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Does that seem fair to you?
My son was diagnosed with a life limiting condition, called Hunter Syndrome back in 2008. Our lives changed forever.[…]
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Oh sweet mother F’in – it’s Miss Pig
Dear Miss Pig, The 31st of May 2004, you and your family burst onto my TV screen. At first I[…]
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What to say when I tell you about Ethan
It isn’t easy for me to say it; my hearts beats a little faster each and every time I’m asked.[…]
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Rare Disease Day 2016
The last day of February is and has been Rare Disease Day (in Ireland) since 2008. That is the same[…]
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