Rare diseases day 2016 – Live, Love, Laugh & Learn

A daddy’s voice – Anthony Woods

A dad losing his baby girl to a rare disease. I was asked to write a piece for rare disease[…]

My son was diagnosed with a life limiting condition, called Hunter Syndrome back in 2008. Our lives changed forever.[…]

Just another disease you had never heard of? My son has a rare disease. A rare disease is defined as[…]

One of these is not the same. Can you tell which one? They are all sweet little girls, happy, bright-eyed,[…]

When my second baby was just a few weeks old, he seemed different than his brother before him. I made[…]

Rare diseases aren’t that rare. Really? Sounds a bit contradictory, doesn’t it? Rare means that it’s very unlikely that we’ll[…]

The last day of February is and has been Rare Disease Day (in Ireland) since 2008. That is the same[…]

Hello! Just a very quick post to let you know that I will be having a few guest writers writing[…]