Ethan – Page 2 – Live, Love, Laugh & Learn

From the sidelines

I knew nothing of medical trials until 2008, when Ethan was diagnosed . I knew nothing about taking part in[…]

We sat in our back garden, the sun shining high above us. Each of us savouring our ice pops. D[…]

My 11 year old son has had two holidays in his lifetime. Neither holiday was one any parent would like[…]

When you’re thrown into the world of ‘syndrome’ or any disability; you search for your kin, your community. There[…]

It is never easy. It is never as simple as let’s ‘just go’. I often envy the pictures I[…]

I have come up with a plan on how to survive summer, which I hope others may find helpful! The[…]

I wrote about Tucker before on FamilyFriendlyHQ I am aware that sometimes the things I write are hard to read and[…]

Clouds gather as the skies darken, She can see it before it happens, His braced legs forcing his feet[…]

Summertime is here! And what a Summer so far! Many thanks to the junior and leaving cert students for their[…]

Raising awareness for Hunter Syndrome (MPS type 2) is always something I am happy to do. Raising awareness costs people[…]