Reality check
I have been asked many times from strangers to social workers–“How do you guys deal with Ethan getting older ?”[…]
Read moreI have been asked many times from strangers to social workers–“How do you guys deal with Ethan getting older ?”[…]
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We all have that one friend, don’t we? The one that is always going to make you laugh, purposely or[…]
Read moreMay 15th was international MPS Awareness day. It was also, the 20th anniversary of the Irish MPS Society.[…]
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As Friday the 15th of May approaches, I thought I’d write about MUCOPOLYSACCHARIDOSIS (MPS) and what it stands for in[…]
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Before Ethan’s diagnosis, there were plenty of other diagnoses…Sensory Processing Disorder was the most recent one, in the run up[…]
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As with most newly married couples,we spent plenty of time showing off my sparkly diamond tanzanite engagement ring and how[…]
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There are a number of reasons we don’t do certain everyday things with Ethan. Never assume it’s because we haven’t[…]
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Respite is a break. A break from the usual daily activities. However,most parents use this time to give the kitchen[…]
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May the 15th is international MPS/ML awareness day. As you all know by now Ethan has Hunter Syndrome, what you[…]
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The plans I had. They were epic. I could see myself, the ever laughing mum, the one that whizzes around,[…]
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