- 1 day ago

One Million Project Fiction Anthology - Proceeds to Cancer Research UK & EMMAUS, the homeless charity.
h J R

- 1 day ago

One Million Project Fantasy Anthology - Proceeds to Cancer Research UK & EMMAUS, the homeless charity.
h J R

- 1 day ago

One Million Project Thriller Anthology - Proceeds to Cancer Research UK & EMMAUS, the homeless charity.
h J R

- 3 days ago

RT @Caketoons1: This is Ethan @ItsMe__Ethan a superhero who wasn't expected to see his 16th birthday but he IS a superhero so his 16th birtโ€ฆ
h J R

- 3 days ago

So I need some heros ! If you know of anyone who would like to help please get in touch ๐Ÿ˜˜ #cosplay #galway #sweet16โ€ฆ
h J R

- 3 days ago

RT @WelshMumWriting: Anyone near Galway want to get involved? Check out @ItsMe__Ethan for info on how could help make a special little boyโ€™โ€ฆ
h J R

Facebook Posts

Evening folks ๐Ÿ˜˜

Someone is having a bit of fun with the ever growing hero collection in our house .

He has no idea that these "toys" are going to meet him in a few weeks .

People are good.

People are good.

Thank you all.

We shall have a venue shortly.

I want to thank you all . The messages are still coming . . I'm beyond humbled ๐Ÿ™๐Ÿ‘๐Ÿ’œ

#bloveethan #itsmeandethan #ethanis16 #hero
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Wow .



To say we are humbled is an understatement.

We cannot believe all the kind thoughtful offers that are coming in to us through Facebook, email,this page and Twitter.

Ethan has no idea any of this is going on but we are very excited to see his reaction when we pull all this together.

There's no way, absolutely no way we could have even got this far without YOU all. You folks are bloody amazing ๐Ÿ‘๐Ÿ‘๐Ÿ‘

We have a good few Cosplay folks coming dressed to impress and we are still working on the Superheros but waiting to hear back.๐Ÿคž They really are all so so awesome , if they can't personally do it , they give me another lead, which is beyond helpful and something NO ONE has to do.

These strangers are wanting to help . Wanting to . ๐Ÿ™Œ๐Ÿ™Œ

Comic Con in Dublin have invited Ethan and us up to Comic Con as their guests , which has left us speechless . They even plan to have us in that bit earlier than everyone else ๐Ÿ˜ฑ๐Ÿ˜That was totally unexpected and again wouldn't have happened if it wasn't for all of YOU .

What can I tell you ? We have cake , we have decorations , we have some special guests and we have a date ๐Ÿ™๐Ÿค๐Ÿ‘๐Ÿ‘

I cannot wait to share the guests with you all but I'm just waiting on confirmation .

13th Of May - it's a Sunday .

It won't be an all day event.

It will only last about 2 hours .

It would be our honour to have YOU all there ๐Ÿ’“๐Ÿ’“๐Ÿ’“

I will of course ,let you all know the venue as soon as I know .

Thank you isn't enough. It really isn't.

We are beyond humbled and a bit emotional to be witnesses to such an outpouring of support , understanding, empathy and blove .

YOU folks have given us such a beautiful sense of community .

Thank you so so very much from the bottom of our hearts โค๏ธ๐Ÿ’“๐Ÿ’œ๐Ÿ’œ

#bloveethan #itsmeandethan #huntersyndrome #ethanis16 #comiccon18
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Thereโ€™s an unwritten rule for families like ours. We donโ€™t dare say it but we think and feel it so deeply especially each time we come up to another milestone.

His milestones are different.

They pack a punch.

They fill me with pride yet dread.

They push me to do something to mark the occasion, however small, however big , however scared I am feeling because , because there is that unspoken, unwritten rule - we mustn't say it, we must not upset any family members and we must not make others uncomfortable .

We must not leave others feeling sad.
We must not leave others feeling lost for words.

My son turns 16 soon and I am going to tell you just some of the topics which make up this unwritten , unspoken rule .

I worry this will be his last birthday.

I worry that the only time people will come in the crowds is for my son's funeral.

I donโ€™t want that.

I want you to come when heโ€™s here and with us.

I want those of you who read all about him to show up.

I want those who babysat him to show up.

I want those who worked with him to show up.

I want the good friends D and I may have lost contact with over the years to show up.

I am so afraid that he wonโ€™t see his 17th birthday.

Each birthday, especially since he turned 13 , fills me with reminders that I donโ€™t want . These reminders invade my thoughts and I must talk about them however uncomfortable they are, because if I donโ€™t, I really donโ€™t think Iโ€™d ever be able to celebrate Ethan.

I am once again reminded my son will never kiss a girl.
He will never fall in love.
He will never feel that wonderful feeling of being in love.
He will never get married.
He will never have children.
He will never drive.
He will never graduate college.
He will never go on a โ€˜benderโ€™ and lie to us about it.
He will never get drunk.
He will never sit with us and tell us a story about his mates at school.
He will never get a job.

So while I will do my best to celebrate my son and his reaching of a milestone behind all that lays a heart break no one ever wants to talk about.

And thatโ€™s ok, I understand.

I understand itโ€™s sad.

I understand itโ€™s uncomfortable .

I understand no one knows what to say .

There is nothing to say.

Words are often lost on parents like me too, thatโ€™s the truth and thatโ€™s what makes it harder for others to communicate with us- I understand all that.

Yesterday I put up a facebook status on my personal page asking if anyone could help me source some โ€˜Superherosโ€™ to attend Ethan's party.

I put the same thing on my instagram account.

I am simply looking for those amazing cosplay people we saw at Comic Con , last year in Dublin, to perhaps , if they live in and around Galway to make a short appearance at my sonโ€™s birthday.

I donโ€™t have the funds to pay them, but I can give them food, a bit of a laugh, a nice write up and of course the chance to meet a real life hero, because Ethan is one.

He really, really is.

I donโ€™t even know if Ethan will recognise any of these characters , but I hope, I hope he does.

Hope is often the only thing that keeps families like ours going .

Ethan was king of dressing up when he was younger; he didnโ€™t wear average clothes , he was a superhero or a Disney character as soon as my back was turned. So much so that I used to send him to school dressed up!

He lives for Halloween and Christmas .

Less than 24 hours after I posted on Facebook and shared to instagram; there has been a flutter of tweets across the internet asking for help in sourcing these folks who enjoy cosplay and attend events like Comic-Con because they are fans , die hard fans.

The actions of my fellow bloggers just this morning,especially on twitter has given me the drive to continue to try to organise a huge super sweet 16th party for Ethan.

People may not know what to say but their actions this morning have humbled me to the point of me not knowing how to respond to them all.

Thank you, doesnโ€™t ever seem enough.

You are all invited to come and meet Ethan or reconnect with us, on Sunday May 13th, venue and time to be confirmed (eventually )

And even if we canโ€™t source some Superheroโ€™s , there is one superhero who will be there and excited to hear โ€˜Happy Birthdayโ€™ being sung to him.

#ethanis16 #cosplay #itsmeandethan #bloveethan #huntersyndrome
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"Her story always causes them to apologise for their own story."
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Morning folks ๐Ÿค—

On pancake Tuesday I received a lovely parcel from @Netflixuk ๐Ÿ˜

Those who know me ,know that the last time I made pancakes they stuck to the ceiling ๐Ÿ˜–๐Ÿ˜ฑ

I'll never be,even a basic cook ๐Ÿ˜ I'm ok with that , my kids have accepted it and my hubby is a great cook ๐Ÿ˜‰

I would like to state here and now that I have never poisoned anyone , so I'm not THAT bad - as far as I know ๐Ÿ˜‚๐Ÿ˜

A knock on the door Tuesday evening became a wonderful opportunity for mainly me ,to be honest ๐Ÿ˜‚

Our lovely neighbours young daughter came in to see if she could use the Netflix stencil which came with my parcel.

When life hands you a wonderful 13 year old girl who's looking to bake ,you simply hand her the box ๐Ÿ˜๐Ÿ˜‚

She was delighted with it and went off to bake and make Netflix pancakes ...all I asked for in return was a picture of her creations ...

I have to say she done far better than I ever could ๐Ÿ‘๐Ÿ‘๐Ÿ‘

Teenage girls are so different from teenage boys ; when I asked my 13 year old if he'd like to make pancakes his response was "no ,but if Dad makes them, I'll eat one or two,maybe three "๐Ÿ˜Œ(notice the use of the word dad in that sentence ๐Ÿ˜‚)

Below is the wonderful creation our beautiful neighbour A made ๐Ÿ˜๐Ÿ˜

#netflixstreamteam #pancakeday #itsmeandethan #bloveethan
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  1. Did you ever find out what the canteen lady’s name was? I have 2 aunts who work there and was just wondering if it was one of them. Because the way you describe her sounds like them both. But all the staff are so kind and get little or no recognition for the job they do. So from myself and the many times I’ve spent overnight with my 3 boys (ESPECIALLY my eldest son now 18) thank you ladies from the bottom of my heart xxxx

    1. Hey Suzanne! Yes I did indeed. Nora is the lovely ladies name! Yoou’re absolutley right, there are many amazing ladies and gents working there, that’s for sure. Thank you so much for taking the time to get in contact. Wishing you and your boys well x

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