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Category: Ethan

Raising a child with a life limiting condition; the reality of MPS- hunter syndrome.

Santa came to our house

March 24, 2015 ger Ethan, Motherhood

It is Christmas. Video camera in hand, I was ready to tape our boys opening their gifts, as I do[…]

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Wasted worry…again

March 23, 2015 ger Ethan, Motherhood

So I worried needlessly all night long.Ethan is fine,happy and excited about Santa, phew. I’ll just go find something else[…]

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worry worry worry

March 23, 2015 ger Ethan

“They” say if everyone put their worries on a table, you’d take back your own ~ whom ever “they” are,[…]

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Finally, I got that Friday feeling….

March 23, 2015 ger Ethan, Life

Friday was one of those days~one that has your soul dancing. Ethan came home from school singing, “ho ho ho[…]

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Special and truly gifted

March 23, 2015 ger Ethan

I didn’t know it when I first met him. They took him over to the corner. I tried to see[…]

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Budget cuts

March 23, 2015 ger Ethan

Ethan got his casts off on Friday. I spent the last three weeks( when he was in casts) getting his[…]

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Meet my superhero

March 23, 2015 ger Ethan, Life, Motherhood

He runs like he knows it’s a gift to be treasured, his little face all flush, breathing hard he grabs[…]

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Time

March 23, 2015 ger Ethan, Life

Tick Tock; stop the clock, Prevent the bells from calling out, Tell the tulips Spring ain’t coming, Get the birds[…]

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An honest insight

March 23, 2015 ger Ethan, Motherhood

I’ve been told, that I am strong, inspirational, amazing…all those lovely words people say to you when they learn about[…]

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Respite and Cement

March 23, 2015 ger Ethan

After years of asking for respite for Ethan, we finally go it, shortly after baby D was born. Respite, is[…]

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