~Our Cafe Surprise ~
We entered the cafe. A waiter came and showed us to our table. Ethan was now sleeping in his chair.[…]
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Category: Ethan
Raising a child with a life limiting condition; the reality of MPS- hunter syndrome.
Five days of Magic~~5 billion tissues
We spent five days in the magical kingdom. Five days of such high emotions. Five days of watching strangers doing[…]
Read moreThe joys of being mammy
Tired. That is really how I answer most people who ask me how I am. “Hey, how the heck are[…]
Read moreMickey F***ing Mouse
The sun was shinning brightly when we stepped outside our hotel. D was pushing an excited Ethan while J was[…]
Read morePeople are strange
“Yeah, before you abuse, criticise and accuse, walk a mile in my shoes” Sometimes I want to roar that. From[…]
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Disneyland Baby
Arriving at our hotel, Disney’s Newport Bay Club, the excitement in the car was electric. I felt like I was[…]
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When you make a wish…
We boarded the plane in the late afternoon. We were the first to board. J was so excited he ran[…]
Read moreTick Tock Stop the clock
Tomorrow our baby D turns 1. That year flew by quicker than a hungry cheetah chasing a Zebra! Time is[…]
Read moreWe’ve met Batman
We were told days after Ethans diagnosis that there was a glimmer of hope… There was a drug, a man[…]
Read moreEthan the teacher
Ethans diagnosis brought us many, many things. It brought us joy even in our darkest hours. I know, to most[…]
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