Beautiful Child
So I think the school may have had enough of Ethan’s obsession with Christmas… As I have said before Ethan[…]
Read moreCategory: Ethan
Raising a child with a life limiting condition; the reality of MPS- hunter syndrome.
Dear everyone who has ever told me that they understand: I appreciate the gesture, I do.
It is hard to explain to those of you who are lucky enough to have healthy children. The moment you[…]
Read moreFor everything ELSE there is Mastercard….
Ethan and his casts… He unsteadily gets up from his chair while I run to steady him. He shakes me[…]
Read moreCasts and Ethan~ not fun
Day two of Ethan in casts. So far I have learned the breaks on his buggy will not stop him[…]
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Blove don’t last that long!
Ethan had a crush. This was the first time I was to see my boy ‘woo’ a lady! He stood[…]
Read moreDoctor, Doctor, I trust you, I do
The faith we have in doctors is amazing. I stood in the empty waiting room in tears. I had just[…]
Read moreAll ya need is Blove ~Ethie Blove is all ya need
He is standing over me. Breathing heavily through his mouth. I squint, watching him. “Shh” he places his curled forefinger[…]
Read moreEvery single time…it gets me
Hospital. Each and every time we get an appointment for Ethan to attend the National Children’s Hospital, I get anxious.[…]
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This is the Disney Parade…
We ended our magical trip on one hell of a high. We gathered in the towns square, main street USA[…]
Read moreChristmas ~ the reality for me
Christmas Time ~ it’s the most wonderful time of the year~ or so we are told. Don’t get me wrong,[…]
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