As Friday the 15th of May approaches, I thought I’d write about MUCOPOLYSACCHARIDOSIS
(MPS) and what it stands for in my life;
M– is for ‘Munching’— boy does my Ethan LOVE his food and your food and that guys food and….
U– is for ‘Unique’— Need I say more?!
C– is for ‘Cute’— Yes Ethan is cute- to quote his Grandad W “He’s a cute little shite, that one!”
O– is for ‘Occupational’— Ethan has taught us all about occupational hazards in the workplace and in the home!
P– is for ‘Pulling’— Ethan is great at pulling at things he really shouldn’t; his speciality is pulling the seatbelt from behind you while you drive!
O– is for ‘Outbursts’— Ethan keeps them regular, just to keep me on my toes!
L– is for ‘Laughter’—Ethan knows how to laugh, you gotta hear it to love it!
Y– is for ‘Yes’— Ethan’s absolute favourite word; one he has never misused or forgotten!
S– is for ‘Santa’— Who apparently can randomly pop into conversation, any day, any time and anywhere, especially if Ethan spots a man who may or may not have weight issues!
A– is for ‘Alternate’— Alternate plans must be run by Ethan, over and over…
C– is for ‘Cartoons’— You name the cartoon; we know it… intimately!
C– is for ‘ Certainty’— Not at this abode! Expect the unexpected with Ethan around!
H– is for ‘Houdini’’— Houdini’s got nothing on our Ethan…
A-is for ‘Art’— Ethan has been known to dabble in art…on the walls, on the floors, on the tables, chairs ,on his siblings…
R– is for ‘Roar’— Ethan has breathing issues…I beg to differ…put on Spongebob…show him a cake….he is Ethan hear him roar!
I-is for ‘Infinate’— did you know there is more than one place to go to the poop…not including the toilet….
D-is for ‘Dough’— Ethan’s idol is Homer Simpson…no one, no one makes Ethan laugh more.
O-is for ‘Open’— Nothing is sacred if you leave it open…always close doors too or you’ll be having a work-out session without your consent!
S-is for ‘Sweets’— Ethan can sniff them out even if you have left them in your car!
I-is for ‘Ice –scream’— If Ethan sees it, it is his…he likes to lick it, suck it and wear it…which he does rather well!
S– is for ‘Shit’—In ALL it’s context….
Most importantly, MPS has taught us to ‘BLOVE’…blove what we have and who we have in the here and now…
Thank you for reading! Obviously this is NOT what MPS stands for, please feel free to follow the link to find out what MPS is…visit The MPS Society UK.
Wear purple this Friday in support of ALL families effected by MPS…feel free to tag me in photos, or on my blog to help create awareness!
Cheers folks… and a huge thanks to my hubby D for helping me with this and of course Ethan for the inspiration as always!