As Friday the 15th of May approaches, I thought I’d write about MUCOPOLYSACCHARIDOSIS (MPS) and what it stands for in my life; M– is for ‘Munching’— boy does my Ethan LOVE his food and your food and that guys food and…. U– […]
Before Ethan’s diagnosis, there were plenty of other diagnoses…Sensory Processing Disorder was the most recent one, in the run up to Christmas 2007. It was Christmas week. The atmosphere in our City of Galway was magical. The boys were anticipating the arrival […]
May the 15th is international MPS/ML awareness day. As you all know by now Ethan has Hunter Syndrome, what you may not have known is that Hunter Syndrome is also known as MPS type 2. This is a very special day for […]
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