ANOTHER AWARENESS DAY -MAY 15TH
My experience in writing such pieces has taught me that the facts and figures are uninteresting to the general public, it is the people that strike a cord with them.
Tag: MPS
May 15th …
May 15th. On this International Day of Families I wanted to share with you all a little bit about my family. May 15th. This is three days before my eldest son turns 16 and it will be two days after his big […]
ProjectAlive.org
It started with an email. An email asking me to write a blog post for an up and coming fundraising/awareness campaign. As I wrote the blog, tears fell down my face. This was my life. This was my reality, stripped bear for the […]
Being a carer in Ireland…
What happens after? This question weighs heavily on my mind. This is not an easy piece to write nor is it easy to ‘put it out there’ but…but I do feel we the caregivers must ask this—what happens after? (I can only […]
Perspective
Ethan was having his usual treatment on Thursday. He had also his usual treats, practically anything he wanted, when he wanted it. If ya can’t spoil a kid who endures as much as Ethan, once a week, then whats the point eh?! […]
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Tagged Huntersyndrome, MPS