Blog post

Welcome To The Jungle!

It’s a dark, crowded, murky, heavy jungle worth cutting your way through to find that beautiful clearing. Types of parents, I guarantee you’ll meet within this jungle of Special Needs. The Extreme Activist – They are going to change the whole darn […]

Read More

Back To The Diagnosis

  I sit with him most days trying to get a smile, a smirk or even a little kiss. He’s a far cry from the affectionate little boy he once was. There was a time not too long ago that he would […]

Read More

Raising Ethan

What is it like raising a child with a terminal illness? I’ve often been asked that age-old question “How do you do it?” It in this sentence is in reference to raising my son, Ethan who has not only got some extra […]

Read More

The Reality Behind The Hospice

What is a hospice? Is it a place where sadness hides in every corner? Is it a place that no one dares to speak of? Is it a place that means our children’s lives are coming to an end? Is it a […]

Read More

It’s Been Awhile

  I watch him sleep. I watch his little body jerk. I watch his arms and legs flail around before finally resting. I know he won’t sleep for long. I do my usual bits and pieces around the house (it’s true what […]

Read More

Parents Day 2018

What makes a parent? They are the comforters. They are the sleep deprived. They are the first educators. They are the taxi drivers. They are the schedulers. They are the appointment keepers. They are the referees. They are the supporters, the number […]

Read More

Dyson Pure Cool is Cool

  It couldn’t have come at a better time. He had been struggling . This was a new struggle for him and us . We have never had to deal with this kind of heat here in Ireland before but with Ethan […]

Read More

Should -ing ….

It’s that time of year again where we get to take some time out of routine. Gone are the rushed early mornings, the, ‘oh no I forgot to get sandwich fillers for lunches’, and the panic over the school phone number flashing up […]

Read More

Our World

”You are now in a secret world. You’ll see things you never imagined; ignorance, rudeness and discrimination, but you’ll also witness so many everyday miracles and you’ll know it. You won’t think a milestone is just a milestone, you’ll know it’s a […]

Read More

SUNRISE UP CROAGH PATRICK

We were halfway to Dublin. We were focused on what tests were to be carried out and which tests would require another appointment or even a stay over. We were in our own little bubble worrying about our son and his medical […]

Read More