We felt our backs were to the wall.
All the medications, all the different types and still…still we were watching him scream, shout, cry and hurt himself up to six times a day.
We knew we had to try something else.
“There is nothing else. Ethan has gone through all the medications we can offer a child of his size” the doctor informed us.
We walked away from that meeting deciding that we could not sit back and watch Ethan go through so many violent meltdowns even while on these prescribed medications.
We decided to try hemp oil.
It’s been over a month now.
The first oil gave us hope – his meltdowns became less violent, less intense and their frequency reduced…but his sleep suffered , he was still agitated, still quick to anger and still very much unpredictable.
The second oil gave us more hope – he has roughly one meltdown a day. He is excitable,happy and speaking more. He is communicating his wants to us and we are laughing again with him. He is eating and putting on weight.
For the first time in seven months, I brought my three boys for a walk today. Just me and my boys. I didn’t need D. I didn’t need my amazing friend A. Just me and my boys walking around the estate while the sun shone high in the sky.
I felt hopeful, dare I say it, I felt hopeful that with some home help (eventually coming our way) I could venture further than the estate with another adult to help.
For five long months I’ve been swimming against a dark, overpowering current catching my breath only to cry. And that’s the truth. As bleak as that sounds, that has been our lives over these past months.
My thoughts wandered to medical cannabis oil.
I began to imagine …if (legal) hemp oil can help Ethan , what could medical cannabis do?
I read all about Vera Twomey and her plight to try to access medical cannabis for her beautiful daughter , Ava. I wished so much I could walk alongside her, instead I followed on Facebook.
I figured the way I could help, in a very small way, is to write this piece.
Write the truth.
Our experience with hemp oil is positive. It’s not magical, the oil. It isn’t a cure. But it is helping.
We still have to find the best dosage , but in time, I believe we will find it. And because no doctor can prescribe it , we have to fight to get even the legal hemp acknowledged by the medical professions. (I do feel the need to say, how supportive our doctors have been with us using the hemp oil- while they can’t prescribe it, they do listen and are learning along with us)
Imagine how long it will take for medical cannabis to be prescribed. Ethan’s life and the lives of many others have been put on hold, while our government decide , let’s be honest here, while they decide ,how they can profit from families like ours.
That is the bottom line. It is always about money.
Families like ours don’t have the time to wait around for our government to make an actual decision. Our government need to make it medicine. They need to make medical cannabis medicine.
They need to do this soon.
Simon Harris , do the right thing. Don’t make this all about profit.
Think of the hundreds of families like Vera’s (whose daughter Ava suffers terribly with seizures), families like mine (Ethan has unpredictable violent meltdowns, due to the progression of his syndrome)
The families all over this little island are begging you to hear Vera and answer her plea… for all the other ‘Ava’s’ and ‘Ethan’s’ all over Ireland, Simon Harris make it medicine.
Vera, I stand with you. X
This was originally published on FamilyFriendlyHQ