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5 days ago

It's me & Ethan

...and so the youngest has learned to do as his brother does💔

"Half for Ethan, half for me" he says as he places each "Skip" (crisp- which melt in the mouth 😉) carefully into his eldest brothers mouth.

...and so the youngest questions what Ethan was like "before".

"Did Ethan talk mammy?"

I nod.

"Did Ethan run mammy?"

I nod .

"Did Ethan feed himself mammy?"

I nod.

"Did Ethan go to the toilet mammy?"

I nod.

"Ah that's sad mammy that Ethan can't do that anymore" he states while popping an extra 'Skip' into his own mouth.

I nod.

"Mammy are you sad about that?"

I nod .

"Aw mammy, Ethan still laughs,here let me hug you"

I nod and open my arms up to my five year old who's learning to care for his 16 year old brother without even knowing it.

...and so the youngest begins to ask for stories about the Ethan before just so he can get to know the same Ethan as his older brother knows ...

I nod and take a breath and tell him about our four foot whirlwind Ethan and his adventures of long ago ...

He smiles and laughs while Ethan points and yells and I nod once more shaking the past off and forcing myself to be here in the now.

*Thinking of all my MPS families who have to watch a relentless syndrome take and take from their kiddies while trying hard to create an average childhood for their other kiddies - sending you all love and strength 💕💔

#bloveethan #itsmeandethan #huntersyndrome
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  1. Did you ever find out what the canteen lady’s name was? I have 2 aunts who work there and was just wondering if it was one of them. Because the way you describe her sounds like them both. But all the staff are so kind and get little or no recognition for the job they do. So from myself and the many times I’ve spent overnight with my 3 boys (ESPECIALLY my eldest son now 18) thank you ladies from the bottom of my heart xxxx

    1. Hey Suzanne! Yes I did indeed. Nora is the lovely ladies name! Yoou’re absolutley right, there are many amazing ladies and gents working there, that’s for sure. Thank you so much for taking the time to get in contact. Wishing you and your boys well x

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