I have visited these three centers and I honestly felt like Goldilocks- none felt right.
My experience in writing such pieces has taught me that the facts and figures are uninteresting to the general public, it is the people that strike a cord with them.
His hand reached up.Gently I held it.I bent down to his eye level.Quickly his other hand smashed into the side of my face.His boot cracked repeatedly off my shin bone. For a guy who stood at 4 ft 0 inches he had […]
Tears, Tempers and Tantrums. Oh man, eh? If there was one simple trick to help avoid these behaviours wouldn’t parenting be a whole lot easier?! Sadly, there is not one trick- there isn’t even a step by step guide,there is however; luck,patience, […]
It is estimated that there are 350 million people worldwide living with a rare disease. That is the only statistic I will share with you today. I have written many, many times about the statistics around having a rare disease. I have […]
I watch him sleep. I watch his little body jerk. I watch his arms and legs flail around before finally resting. I know he won’t sleep for long. I do my usual bits and pieces around the house (it’s true what […]
”You are now in a secret world. You’ll see things you never imagined; ignorance, rudeness and discrimination, but you’ll also witness so many everyday miracles and you’ll know it. You won’t think a milestone is just a milestone, you’ll know it’s a […]
May 15th. On this International Day of Families I wanted to share with you all a little bit about my family. May 15th. This is three days before my eldest son turns 16 and it will be two days after his big […]
Out with the new and in with the old. It’s the other way around for most people but we are not most people. In the last quarter of 2016, we spent quite a few nights in hospital with Ethan. It happened quickly […]
There are people who walk amongst us who look like everyone else. They shop, eat, have families and do everyday things like we all do. These people do not look any different from you or I but when you get to […]