Raising Ethan

What is it like raising a child with a terminal illness? I’ve often been asked that age-old question “How do you do it?” It in this sentence is in reference to raising my son, Ethan who has not only got some extra […]

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The Reality Behind The Hospice

What is a hospice? Is it a place where sadness hides in every corner? Is it a place that no one dares to speak of? Is it a place that means our children’s lives are coming to an end? Is it a […]

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It’s Been Awhile

  I watch him sleep. I watch his little body jerk. I watch his arms and legs flail around before finally resting. I know he won’t sleep for long. I do my usual bits and pieces around the house (it’s true what […]

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Parents Day 2018

What makes a parent? They are the comforters. They are the sleep deprived. They are the first educators. They are the taxi drivers. They are the schedulers. They are the appointment keepers. They are the referees. They are the supporters, the number […]

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Dyson Pure Cool is Cool

  It couldn’t have come at a better time. He had been struggling . This was a new struggle for him and us . We have never had to deal with this kind of heat here in Ireland before but with Ethan […]

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Should -ing ….

It’s that time of year again where we get to take some time out of routine. Gone are the rushed early mornings, the, ‘oh no I forgot to get sandwich fillers for lunches’, and the panic over the school phone number flashing up […]

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Our World

”You are now in a secret world. You’ll see things you never imagined; ignorance, rudeness and discrimination, but you’ll also witness so many everyday miracles and you’ll know it. You won’t think a milestone is just a milestone, you’ll know it’s a […]

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SUNRISE UP CROAGH PATRICK

We were halfway to Dublin. We were focused on what tests were to be carried out and which tests would require another appointment or even a stay over. We were in our own little bubble worrying about our son and his medical […]

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Stressed…

“Of course you should do it” my mammy had said . My husband too had given me his blessing. I explained to the boys what taking part would involve and once it was explained to my middle guy J, that he would […]

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Ethan’s Super Duper 16th

He is not like other 16 year olds and for a long time that hurt me. From time to time , it still does. When I see my friends son, who is the same age, I can’t help but wonder what my […]

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