Oh, it has landed. It has well and truly landed. I am, however, learning that the teenage years are completely and utterly different when you are the parent. I would like to take this opportunity to apologise to my parents and to say that […]
It is estimated that there are 350 million people worldwide living with a rare disease. That is the only statistic I will share with you today. I have written many, many times about the statistics around having a rare disease. I have […]
The future is something many parents worry about; regardless of your child’s abilities, we all worry about the future. The future is something most parents almost dream about; we are always thinking or wondering or planning what life will be like when […]
I read all these wonderful families stories about how much tube feeding has helped their children.Some children need the tube placed just for a short time, while others need it for longer or even for life. My son falls into the less […]
Currently our nurses are planning a strike here in Ireland, on the 30th of January. Why? Well, that depends on who you speak to. My understanding is that the nurses want their pay restored to what it was before the economy crashed […]
I have been wondering recently if it’s just me or if most parents feel that with New Year comes some New Battles. Or New Year same old battles? In my world, everything is a battle. And it’s funny because when I talk […]
It’s the sparkling lights, Soft glows reflected in their faces. It’s the busyness,hustle n’ bustle, Meeting friends and some old faces. It’s the smell of wood burning, Memories of Christmas’ long ago. It’s the presents wrapped, With care; surprises all in a […]
There isn’t an email going around the office. There isn’t talk about who’s wearing what while dodging the boss. There isn’t last years gossip floating above the crowded canteen making everyone anticipate this years gossip. I miss it. I miss the work […]
It’s a dark, crowded, murky, heavy jungle worth cutting your way through to find that beautiful clearing. Types of parents, I guarantee you’ll meet within this jungle of Special Needs. The Extreme Activist – They are going to change the whole darn […]
I sit with him most days trying to get a smile, a smirk or even a little kiss. He’s a far cry from the affectionate little boy he once was. There was a time not too long ago that he would […]
