One of the messages that seem to repeat in my inbox are about how the book has made it easier for parents to help their friends and family understand a little bit about thier life with a child who has extra needs.
I have visited these three centers and I honestly felt like Goldilocks- none felt right.
We found a disabled parking space, close to the promenade. We sat for a moment watching families walk up and down the promenade stopping only to check that the sand had finally dried off their feet. We climbed out of the car […]
His school have been using it for a little while now. There’s talk of us getting our own one soon, but for now we have the use of the schools one over the Summer break. It’s an odd shape. It can’t be […]
He is the kind of kid who really helps you grow a thicker skin; he can insult you and make you laugh all in the same sentence.
Ethan’s own birthdays were a huge celebration of all things Ethan with a side of ‘F@uck you Hunter Syndrome our boy is still here’.
My experience in writing such pieces has taught me that the facts and figures are uninteresting to the general public, it is the people that strike a cord with them.
Sometimes when I talk about the things he used to do, people who know him now can’t comprehend that the same boy sitting in the wheelchair in front of them once told a woman who was staring at him to ‘F*uck off”!
There are so many great things about being a parent to a child like Ethan. People tend to not know that. They tend to think or imagine our lives as sad ones or a life full of struggles and battles; while on […]
His hand reached up.Gently I held it.I bent down to his eye level.Quickly his other hand smashed into the side of my face.His boot cracked repeatedly off my shin bone. For a guy who stood at 4 ft 0 inches he had […]