Five days of Magic~~5 billion tissues

We spent five days in the magical kingdom. Five days of such high emotions. Five days of watching strangers doing their best to make our boy happy. There were no queues we could go on any ride as many times as Ethan […]

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The joys of being mammy

Tired. That is really how I answer most people who ask me how I am. “Hey, how the heck are ya?” they stand waiting, as if expecting me to go into some level of detail. Instead, I smile and say ” I’m […]

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Mickey F***ing Mouse

The sun was shinning brightly when we stepped outside our hotel. D was pushing an excited Ethan while J was skipping along side them. The Autumn leaves where crunching under our feet when Ethan decided he no longer wanted or needed his […]

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People are strange

“Yeah, before you abuse, criticise and accuse, walk a mile in my shoes” Sometimes I want to roar that. From the top of my lungs in the middle of the street. I get tired of pretending I don’t see the ignorance that […]

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Disneyland Baby

Arriving at our hotel, Disney’s Newport Bay Club, the excitement in the car was electric. I felt like I was a child as I jumped out staring up at this beautiful huge hotel. “Wow” I smiled as Ethan bursted out of the […]

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When you make a wish…

We boarded the plane in the late afternoon. We were the first to board. J was so excited he ran up and down the plane screaming “Up , up and away!”. The air hostesses were just smiling and helping D with our […]

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Tick Tock Stop the clock

Tomorrow our baby D turns 1. That year flew by quicker than a hungry cheetah chasing a Zebra! Time is a funny thing. It’s different for us now. We don’t view time like most. Time is a tough pill to swallow. We […]

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We’ve met Batman

We were told days after Ethans diagnosis that there was a glimmer of hope… There was a drug, a man made enzyme to be exact, the very same enzyme that our Ethan was missing. The very same enzyme that our boy needed. […]

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Ethan the teacher

Ethans diagnosis brought us many, many things. It brought us joy even in our darkest hours. I know, to most of you, that makes little sense. It was such a long battle to get a diagnosis, that when it came, joy came […]

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Tesco Every Little Helps!

Just when we needed something, anything to look forward to, it was there. It had been a month since Ethans diagnosis. If I am being totally honest, I think in that first month, I tried my best to ignore it. I refused […]

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