Left To Chance ?

The future is something many parents worry about; regardless of your child’s abilities, we all worry about the future. The future is something most parents almost dream about; we are always thinking or wondering or planning what life will be like when […]

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Tube Feeding Awareness

I read all these wonderful families stories about how much tube feeding has helped their children.Some children need the tube placed just for a short time, while others need it for longer or even for life. My son falls into the less […]

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Nurses Strike

Currently our nurses are planning a strike here in Ireland, on the 30th of January. Why? Well, that depends on who you speak to. My understanding is that the nurses want their pay restored to what it was before the economy crashed […]

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Your Presence Is Required

It’s the sparkling lights, Soft glows reflected in their faces. It’s the busyness,hustle n’ bustle, Meeting friends and some old faces. It’s the smell of wood burning, Memories of Christmas’ long ago. It’s the presents wrapped, With care; surprises all in a […]

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Offended?

This Christmas there’s a lot of talk about offensive lyrics in Christmas songs. “Baby it’s Cold Outside”- which I have always believed is about a courting couple who really would like to spend the night together but due to society they really […]

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Welcome To The Jungle!

It’s a dark, crowded, murky, heavy jungle worth cutting your way through to find that beautiful clearing. Types of parents, I guarantee you’ll meet within this jungle of Special Needs. The Extreme Activist – They are going to change the whole darn […]

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Back To The Diagnosis

  I sit with him most days trying to get a smile, a smirk or even a little kiss. He’s a far cry from the affectionate little boy he once was. There was a time not too long ago that he would […]

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Raising Ethan

What is it like raising a child with a terminal illness? I’ve often been asked that age-old question “How do you do it?” It in this sentence is in reference to raising my son, Ethan who has not only got some extra […]

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The Reality Behind The Hospice

What is a hospice? Is it a place where sadness hides in every corner? Is it a place that no one dares to speak of? Is it a place that means our children’s lives are coming to an end? Is it a […]

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It’s Been Awhile

  I watch him sleep. I watch his little body jerk. I watch his arms and legs flail around before finally resting. I know he won’t sleep for long. I do my usual bits and pieces around the house (it’s true what […]

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