Author!
One of the messages that seem to repeat in my inbox are about how the book has made it easier for parents to help their friends and family understand a little bit about thier life with a child who has extra needs.
Category: Ethan
Raising a child with a life limiting condition; the reality of MPS- hunter syndrome.
The Launch
Tomorrow my book ‘Ethan & Me’ will be officially on sale . I’m anxious. I have this nervous energy ; I feel like I am awaiting results of some test that I never knew I was taking! I hope people like it […]
2021
Well, it has been awhile . I haven’t been writing as much as I normally would on here due to what I can only describe as life’s little way of refocusing your attention onto something else. 2020 – what a year for […]
- Accessibility
- Awareness
- Being Irish!
- Ethan
- Ethan the adult
- Irish childhood
- Lauralynn
- Life
- Motherhood
- MPS Awareness
ALMOST AN ADULT
I have visited these three centers and I honestly felt like Goldilocks- none felt right.
IT’S JUST BEACHY, AIN’T IT?
We found a disabled parking space, close to the promenade. We sat for a moment watching families walk up and down the promenade stopping only to check that the sand had finally dried off their feet. We climbed out of the car […]
STILL STANDING
His school have been using it for a little while now. There’s talk of us getting our own one soon, but for now we have the use of the schools one over the Summer break. It’s an odd shape. It can’t be […]
SEVENTEEN
Ethan’s own birthdays were a huge celebration of all things Ethan with a side of ‘F@uck you Hunter Syndrome our boy is still here’.
- Awareness
- Brothers
- Campaigns
- Ethan
- Irish childhood
- Life
- May 15th MPs awareness
- MPS Awareness
- Mps awareness day
ANOTHER AWARENESS DAY -MAY 15TH
My experience in writing such pieces has taught me that the facts and figures are uninteresting to the general public, it is the people that strike a cord with them.
THE YEARS ARE INDEED SHORT…
Sometimes when I talk about the things he used to do, people who know him now can’t comprehend that the same boy sitting in the wheelchair in front of them once told a woman who was staring at him to ‘F*uck off”!
THE PERKS!
There are so many great things about being a parent to a child like Ethan. People tend to not know that. They tend to think or imagine our lives as sad ones or a life full of struggles and battles; while on […]
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