People are strange

“Yeah, before you abuse, criticise and accuse, walk a mile in my shoes” Sometimes I want to roar that. From the top of my lungs in the middle of the street. I get tired of pretending I don’t see the ignorance that […]

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Disneyland Baby

Arriving at our hotel, Disney’s Newport Bay Club, the excitement in the car was electric. I felt like I was a child as I jumped out staring up at this beautiful huge hotel. “Wow” I smiled as Ethan bursted out of the […]

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When you make a wish…

We boarded the plane in the late afternoon. We were the first to board. J was so excited he ran up and down the plane screaming “Up , up and away!”. The air hostesses were just smiling and helping D with our […]

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Tick Tock Stop the clock

Tomorrow our baby D turns 1. That year flew by quicker than a hungry cheetah chasing a Zebra! Time is a funny thing. It’s different for us now. We don’t view time like most. Time is a tough pill to swallow. We […]

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We’ve met Batman

We were told days after Ethans diagnosis that there was a glimmer of hope… There was a drug, a man made enzyme to be exact, the very same enzyme that our Ethan was missing. The very same enzyme that our boy needed. […]

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Ethan the teacher

Ethans diagnosis brought us many, many things. It brought us joy even in our darkest hours. I know, to most of you, that makes little sense. It was such a long battle to get a diagnosis, that when it came, joy came […]

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Tesco Every Little Helps!

Just when we needed something, anything to look forward to, it was there. It had been a month since Ethans diagnosis. If I am being totally honest, I think in that first month, I tried my best to ignore it. I refused […]

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MASS!

We laugh. Despite everything we live with, we laugh. Mass is not something we attend regularly. It’s not that we don’t believe in God; we do. We only go when we MUST go. Mass is no easy place to sit with any […]

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3’s …( this is a bit of a long read )

I was never one who believed in that old wives tale ~ bad things happen in threes~ mind you, I had never heard it from anyone other than my mother, up until March 2008, that is. It was a beautiful April’s morning, […]

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ONE HELL OF A KICK!

We attend a lot of appointments with Ethan, about Ethan and for Ethan. As you can imagine, it all can become a bit of a blur. One rolls into the other and I always have trouble remembering who is who, especially when […]

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