Ethan the adult – It's me & Ethan

Tagged #family, #irish, grief, Huntersyndrome

…A Year On…

My eyes scan the screen. I read and re-read what they had typed. They are the ones who are paving the way for me and others like me. They never asked for that “job“. No one would ever ask for that “job.” Against […]

May 15th MPs awareness

MPS Awareness

Mps awareness day

Tagged grief, Huntersyndrome, mpsawareness, rare

May

May for us has always been a month to promote awareness around Mucopolysaccharidosis (also known as MPS. I imagine because it’s pretty tricky to pronounce Mucopolysaccharidosis!)MPS Awareness Day is May the 15th. For years, I have tried to make it a ‘known’ […]

May 15th MPs awareness

Motherhood

Mother’s Day

Tagged author, irish writer

Author!

One of the messages that seem to repeat in my inbox are about how the book has made it easier for parents to help their friends and family understand a little bit about thier life with a child who has extra needs.

2021

Well, it has been awhile . I haven’t been writing as much as I normally would on here due to what I can only describe as life’s little way of refocusing your attention onto something else. 2020 – what a year for […]

ALMOST AN ADULT

I have visited these three centers and I honestly felt like Goldilocks- none felt right.

About Me

Author, Award winning blog Writer @It's Me & Ethan and Freelance writer.

Latest Posts

February 9, 2022

Quotes Of The Day

You're now in a secret world. You'll see things you never imagined; ignorance, rudeness and discrimination. But you'll also witness so many everyday miracles,and you'll know it! You won't think a milestone is just a milestone,you'll know it's a miracle and be present in that moment. You'll treasure things most wouldn't think twice about. You'll become an advocate,an educater,a specialist and a therapist but most of all you'll be a parent to the most wonderful child.;