Conversations
Here’s the truth: I don’t know how to answer their questions.
I don’t know what’s enough or too much to share.
Category: Brothers
Heaters & Hoovers
One of the many things I took away from our very first Bereavement Camp at Barretstown is that ‘Hoovers’ and ‘Heaters’ are in our lives. They’ve always been there.
…A Year On…
My eyes scan the screen. I read and re-read what they had typed. They are the ones who are paving the way for me and others like me. They never asked for that “job“. No one would ever ask for that “job.” Against […]
Marble
The cold air blows through the concrete shed. It is just us in here. Still, I leave my mask around my face. I don’t want to be here, and I don’t want to have this experience. I think of my mother sitting […]
- Awareness
- Brothers
- Campaigns
- Ethan
- Ethan the adult
- FlyforMPS
- Life
- May 15th MPs awareness
- MPS Awareness
- Mps awareness day
May
May for us has always been a month to promote awareness around Mucopolysaccharidosis (also known as MPS. I imagine because it’s pretty tricky to pronounce Mucopolysaccharidosis!)MPS Awareness Day is May the 15th. For years, I have tried to make it a ‘known’ […]
Who Am I?
The morning sun paints the dining room, illuminating the bright yellow walls. I sit at the table with my freshly made cup of tea.My daily routine is so vastly different these days. Sometimes I am unsure what it is I should do […]
2021
Well, it has been awhile . I haven’t been writing as much as I normally would on here due to what I can only describe as life’s little way of refocusing your attention onto something else. 2020 – what a year for […]
STILL STANDING
His school have been using it for a little while now. There’s talk of us getting our own one soon, but for now we have the use of the schools one over the Summer break. It’s an odd shape. It can’t be […]
MY 5 YEAR OLD!
He is the kind of kid who really helps you grow a thicker skin; he can insult you and make you laugh all in the same sentence.
SEVENTEEN
Ethan’s own birthdays were a huge celebration of all things Ethan with a side of ‘F@uck you Hunter Syndrome our boy is still here’.
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Tagged #irish, grief, Huntersyndrome, motherhood