It’s Summer…again

Yep; for most parents they relish the lack of routine, the lack of having to get up to an alarm, the lack of lunch making and heck the lack of having to do anything while a clock ticks loudly reminding them that […]

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I never thought …

I have been thinking lately about a few of things I had thought after I gave birth to my 9lb bundle of Ethan. Below are a few of those things…. I never thought; I’d still be checking my son’s breathing; remember when […]

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It is Carers Week (well almost)

It is National Carers week next week (12th June). The idea behind ‘Carers week’ is to highlight the work Carers do all year round, day in and day out. It is a week where Carers are celebrated . A week where Carers […]

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Decisions

  It is mentioned over and over. It is put into conversation with doctors, physiologists and specialists – never by us, but by them. They say it and they wait. I can feel their eyes on me. I don’t know what the […]

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Nothing to see here! Just going for a walk!

  It was a Monday in March and this day was the first day in months I’d been out with all my three boys. It felt a like a little victory. There’s nothing like your ‘new normal’ to help keep you focusing […]

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My Brothers Letters

  He looked at me. I knew he had it. “Give it back to me!” I held my hand out, expecting him to place my Barbie on my extended palm. He held my Barbie closer to him, “Make me” I was sick […]

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Medical Cannabis Oil

  We felt our backs were to the wall.   All the medications, all the different types and still…still we were watching him scream, shout, cry and hurt himself up to six times a day.   We knew we had to try […]

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Reality …not just mine

    I was having a conversation recently with my sisters about a reclining chair which Ethan needs. They were shocked that there wasn’t some sort of service or financial help towards the cost of this chair other than to take out […]

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Everything changes but…

Everything changes, yet nothing changes… There’s one doctor, well she’s not really a doctor, she hasn’t the ‘Dr’ before her name…well, at least I don’t think she has. I have never noticed. She is part of Ethan’s care team. She always asks […]

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Dear 2016…

    Dear 2016, You began (like most of my years since I became a parent) with an early start and a clear head. You brought me some form of hope; but I was also frightened of you because you reminded me […]

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