Carers Week?

This is the time of year when everyone in politics reminds the public of the valuable work Carers do.

Politicians talk about how wonderful Carers are, but they won’t discuss how Carers are broken.

They won’t talk about how little support Carers get and how that support is unfairly distributed depending on where you live.

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Conversations

Here’s the truth: I don’t know how to answer their questions.
I don’t know what’s enough or too much to share.

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Heaters & Hoovers

One of the many things I took away from our very first Bereavement Camp at Barretstown is that ‘Hoovers’ and ‘Heaters’ are in our lives. They’ve always been there.

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…A Year On…

My eyes scan the screen. I read and re-read what they had typed. They are the ones who are paving the way for me and others like me. They never asked for that “job“. No one would ever ask for that “job.” Against […]

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Ethan Rocks!

Hello and welcome! If you have made your way to this website due to finding one of Ethan Rocks, I am delighted to ‘see’ you! What started as something to keep my mind busy grew into something bigger than I could have […]

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Signs

They say our loved ones can send us ‘signs’. I am sure the grief we live with can make us, the bereaved, more susceptible to these kinds of ‘signs’. We seek them out. We ask for these ‘signs’, regardless of our religious beliefs.
I have never seen so many Robins or feathers randomly strewn across any path I walk since my brother Liam and son Ethan passed away.

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Carers Week

Carers Week runs from the 7th until June 13th. The theme for this years week is ‘Making Carers Visible’.How can we make Carers visible?How many times have Carers heard, “I don’t know how you do it. I couldn’t. You are amazing.”That sentence […]

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Marble

The cold air blows through the concrete shed. It is just us in here. Still, I leave my mask around my face. I don’t want to be here, and I don’t want to have this experience. I think of my mother sitting […]

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May

May for us has always been a month to promote awareness around Mucopolysaccharidosis (also known as MPS. I imagine because it’s pretty tricky to pronounce Mucopolysaccharidosis!)MPS Awareness Day is May the 15th. For years, I have tried to make it a ‘known’ […]

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Who Am I?

The morning sun paints the dining room, illuminating the bright yellow walls. I sit at the table with my freshly made cup of tea.My daily routine is so vastly different these days. Sometimes I am unsure what it is I should do […]

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