May 2021 – It's me & Ethan

The cold air blows through the concrete shed. It is just us in here. Still, I leave my mask around my face. I don’t want to be here, and I don’t want to have this experience. I think of my mother sitting […]

May 15th MPs awareness

MPS Awareness

Mps awareness day

Tagged grief, Huntersyndrome, mpsawareness, rare

May

May for us has always been a month to promote awareness around Mucopolysaccharidosis (also known as MPS. I imagine because it’s pretty tricky to pronounce Mucopolysaccharidosis!)MPS Awareness Day is May the 15th. For years, I have tried to make it a ‘known’ […]

About Me

Author, Award winning blog Writer @It's Me & Ethan and Freelance writer.

Stay Connected

Conversations

Heaters & Hoovers

…A Year On…

Ethan Rocks!

Signs

Carers Week

Marble

…A Year On…

July 9, 2021

Ethan Rocks!

Quotes Of The Day

You're now in a secret world. You'll see things you never imagined; ignorance, rudeness and discrimination. But you'll also witness so many everyday miracles,and you'll know it! You won't think a milestone is just a milestone,you'll know it's a miracle and be present in that moment. You'll treasure things most wouldn't think twice about. You'll become an advocate,an educater,a specialist and a therapist but most of all you'll be a parent to the most wonderful child.;