He limped towards me , his tongue sticking out. He stumbled. I shuffled myself closer to the edge of the couch, I stretched out my arms. “Come on buddy, you can do it” I coaxed as he leaned against the table. “Ethie […]
There are special daddies out there. They walk with us. They stand shoulder to shoulder with doctors and specialist asking the hard questions. They take our hands and remind us “We will be ok” and somehow, we believe them. They talk. They […]
There was a defining moment in my childhood where I was told that my big brother wasn’t like me. My parents, I don’t think had ever any plan to sit us down and tell us that our brother was ‘special’ or ‘different’… […]
“Is there anything Daddy can’t do?” J my middle son asked me last week. “Sure there is buddy!” I laughed as J stood expectantly with his arms on his hips.”Well…” his eyes narrowed, “Give me examples mom” he ordered. “J,why do you […]
It started with an email. An email asking me to write a blog post for an up and coming fundraising/awareness campaign. As I wrote the blog, tears fell down my face. This was my life. This was my reality, stripped bear for the […]
What happens after? This question weighs heavily on my mind. This is not an easy piece to write nor is it easy to ‘put it out there’ but…but I do feel we the caregivers must ask this—what happens after? (I can only […]
“Can we just make sure he has a room to himself..please” I called after her as she turned on her heels and left the waiting area. I could feel their eyes on me as one parent whispered to the other. Ethan was […]
