My brother, (you may remember him from a few previous posts—“Muckers Lotto win” and “Mucker…we should all have one!) and I were reminiscing about Ethan and J, when they were much younger. Mucker laughed “ Remember that time I went to the […]
I have been asked many times from strangers to social workers–“How do you guys deal with Ethan getting older ?” Here is a very honest answer. Ethan had a birthday this past week. A milestone birthday. A birthday that marks so much […]
We all have that one friend, don’t we? The one that is always going to make you laugh, purposely or not. D and I have one such friend. “I’m after getting a summons” he casually dropped into our otherwise, average conversation. “A […]
May 15th was international MPS Awareness day. It was also, the 20th anniversary of the Irish MPS Society. To mark this huge occasion we (the society) were invited to our Presidents abode -Áras an Ùachtaráin, where we would meet Mrs. […]
As Friday the 15th of May approaches, I thought I’d write about MUCOPOLYSACCHARIDOSIS (MPS) and what it stands for in my life; M– is for ‘Munching’— boy does my Ethan LOVE his food and your food and that guys food and…. U– […]
Before Ethan’s diagnosis, there were plenty of other diagnoses…Sensory Processing Disorder was the most recent one, in the run up to Christmas 2007. It was Christmas week. The atmosphere in our City of Galway was magical. The boys were anticipating the arrival […]
As with most newly married couples,we spent plenty of time showing off my sparkly diamond tanzanite engagement ring and how perfectly it slipped into my diamond wedding ring. We were stopped often,(100% due to D’s appearance in Don’t tell the Bride) and […]
There are a number of reasons we don’t do certain everyday things with Ethan. Never assume it’s because we haven’t tried. Trust me, we have. We have learned to listen to the things Ethan can’t say; we’ve learned to read him and […]
Respite is a break. A break from the usual daily activities. However,most parents use this time to give the kitchen a good ‘ol scrub, or perhaps to redecorate your childs room, to grocery shop (in relative, peace), to bring your other children […]
