Amazing May15th !!!
May the 15th is international MPS/ML awareness day. As you all know by now Ethan has Hunter Syndrome, what you may not have known is that Hunter Syndrome is also known as MPS type 2. This is a very special day for […]
Month: April 2015
I’m still mum?
The plans I had. They were epic. I could see myself, the ever laughing mum, the one that whizzes around, fixing things, baking and making things with my children, planning days out, family holidays, spending Summer evenings socialising with my husband and […]
Oh Mary…how you made me laugh
I am genuinely looking forward to ageing. With age comes a certain level of ‘I don’t give a crap’ attitude. This attitude was first demonstrated to me by Mary. When I was in my early 20’s, I worked in a cash office, […]
A nurse,an au pair and a cleaning lady …all rolled into one!
I’ve been sick again since ‘Bad’ Friday. Haven’t I been punished enough?Apparently not. D started his work experience on Tuesday. I had dinner on the table by 5.30, like the fabulous wife that I am. Everything was ok, the day went relatively […]
Good Friday was Bad Friday
Ever wonder what happens in a household when both parents are so sick that they can barely move? Well, wonder no more! We gave in to ‘Netflix’, we sighed right up to that by 8am,Ethan cannot handle advertisements during his programmes and […]
Perspective
Ethan was having his usual treatment on Thursday. He had also his usual treats, practically anything he wanted, when he wanted it. If ya can’t spoil a kid who endures as much as Ethan, once a week, then whats the point eh?! […]
-
- 4 Comments on Amazing May15th !!!
Tagged goblue2015, Huntersyndrome, mpsawarenessday2015