Sometimes when I talk about the things he used to do, people who know him now can’t comprehend that the same boy sitting in the wheelchair in front of them once told a woman who was staring at him to ‘F*uck off”!
There are so many great things about being a parent to a child like Ethan. People tend to not know that. They tend to think or imagine our lives as sad ones or a life full of struggles and battles; while on […]
His hand reached up.Gently I held it.I bent down to his eye level.Quickly his other hand smashed into the side of my face.His boot cracked repeatedly off my shin bone. For a guy who stood at 4 ft 0 inches he had […]
Tears, Tempers and Tantrums. Oh man, eh? If there was one simple trick to help avoid these behaviours wouldn’t parenting be a whole lot easier?! Sadly, there is not one trick- there isn’t even a step by step guide,there is however; luck,patience, […]
Oh, it has landed. It has well and truly landed. I am, however, learning that the teenage years are completely and utterly different when you are the parent. I would like to take this opportunity to apologise to my parents and to say that […]
It is estimated that there are 350 million people worldwide living with a rare disease. That is the only statistic I will share with you today. I have written many, many times about the statistics around having a rare disease. I have […]
The future is something many parents worry about; regardless of your child’s abilities, we all worry about the future. The future is something most parents almost dream about; we are always thinking or wondering or planning what life will be like when […]